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Health, Disabilities & Special Needs

ADA & Disability Information

http://www.public.iastate.edu/~sbilling/ada.html

This site offers an extraordinary assortment of links for ADA (Americans with Disabilities Act) resources and disability information. Categories of links include legal resources, newsletters and Listservs, products and services, and specific disabilities, among others.

Beach Center on Families and Disability

http://www.lsi.ukans.edu/beach/beachhp.htm

A useful site for those coping with a family member’s disability. The Beach Center offers several newsletter, including Friendships, Parent-to-Parent Programs, and Dads and Disability, along with a series of fact sheets with helpful advice on advice on difficult issues, such as How to Encourage Friendships for Children with a Disability.

Center for Disability Policy

http://www.muskie2.usmacs.maine.edu/~cdispol/c-home.htm

The Center for Disability Policy at the University of Southern Maine works toward integrating those with disabilities into community life, and it conducts a wide range of applied research projects toward that end. The Center’s home page explains it’s philosophy and areas of expertise.

Facts for Families

http://www.aacap.org/web/aacap/factsFam

This award-winning site from the American Academy of Adolescent Psychiatry offers nearly 50 information sheets on issues ranging from bedwetting to teen suicide. The material is current, concise, and available in English, French or Spanish. An excellent resource for almost any family issue!

Family Resource Network

http://www.paradisedirect.con/sea/frn.htm

“Bringing together families of children with special needs,” this exceptional site offers a number of excellent services , including one-on-one emotional support (putting parents in touch with others in similar circumstances), a lending library of books and videos, and workshops and seminars. Especially valuable are the Network’s Information Packets, which offer material on a myriad of topics, such as autism, developmental delays, epilepsy, spina bifida, and medically fragile infants. A very worthwhile site!

Family Village

http://www.familyvillage.wisc.edu/

The quintessential site for disability-related resources, the Family Village offers a wealth of information in a clear format with excellent graphics. Established as “a global community that integrates information, resources and communication opportunities,” the site is designed to simulate a real village—click on the Coffee Shop and find the family gathering place, with parent groups, sibling programs, and chat rooms. Drop in on the University and find links to disability research programs (including descriptions!) Move on to Sports and Recreation and tap into a bonanza of recreational resources for those with disabilities, from camps to Special Olympics. This is a super site!

Internet Guide for Parents of Children with Disabilities

http://www.familyvillage.wisc.edu/search/guide.htm

Another extraordinary resource from the Family Village Project, this site serves as a primer for those venturing on to the Internet to learn of a medical condition. Sections include The Basics, Communicating Online, and Finding Information. This is the place to find common health acronyms, newsgroups, information on search engines, even online periodicals of interest to parents of children with special needs.

KidsHealth.org

http://kidshealth.org/

Provides info about the health of kids, ranging from child behavior and development, to nutrition, general health, surgery, and immunizations. Offers a section for children that contains health FAQs for kids, games, and more. Also contains many tips and fun facts to know and tell! A lot of good info at this site!

LD Online

http://www.ldonline.org/

An interactive guide designed as an information source for parents, teachers and children, the LD Online site includes an in-depth explanation of learning disabilities, an update on what’s new in the field, bulletin boards, audio clips, and several other categories.

Our Kids

http://wonder.mit.edu/ok/

Web site dedicated to parents who raise kids with special needs. Provides a reading list for kids, nutrition information, as well as links to other parenting resources. Provides links and support for specific challenges, such as ADD, Chromosome X, and Down Syndrome, and access to national databases, such as GCRC Rare Disorder Network Database and NORD (National Organization for Rare Diseases).

PEDINFO: A Pediatrics WebServer

http://www.uab.edu/pedinfo/index.html

This broad-based site is not just for doctors, but for anyone interested in children’s health. A sampling of categories includes publications, a directory of children’s hospitals, information on congenital illness, disabilities and special health care needs, and parenting.

Special Needs Resources Online

http://www.scsn.net/~nhelman/famconn/other.html

This site provides an extensive index of special needs resources, including newsgroups, university programs, general information, and links to support pages such as the Asthma Page, the Easter Seals Home Page, and Parents Helping Parents.