Health, Disabilities & Special Needs
ADA & Disability Information
http://www.public.iastate.edu/~sbilling/ada.html
This site offers an extraordinary assortment of links for ADA (Americans with Disabilities
Act) resources and disability information. Categories of links include legal resources,
newsletters and Listservs, products and services, and specific disabilities, among
others.
Beach Center on Families and Disability
http://www.lsi.ukans.edu/beach/beachhp.htm
A useful site for those coping with a family member’s disability. The Beach Center
offers several newsletter, including Friendships, Parent-to-Parent Programs, and
Dads and Disability, along with a series of fact sheets with helpful advice on advice
on difficult issues, such as How to Encourage Friendships for Children with a Disability.
Center for Disability Policy
http://www.muskie2.usmacs.maine.edu/~cdispol/c-home.htm
The Center for Disability Policy at the University of Southern Maine works toward
integrating those with disabilities into community life, and it conducts a wide range
of applied research projects toward that end. The Center’s home page explains it’s
philosophy and areas of expertise.
Facts for Families
http://www.aacap.org/web/aacap/factsFam
This award-winning site from the American Academy of Adolescent Psychiatry offers
nearly 50 information sheets on issues ranging from bedwetting to teen suicide. The
material is current, concise, and available in English, French or Spanish. An excellent
resource for almost any family issue!
Family Resource Network
http://www.paradisedirect.con/sea/frn.htm
“Bringing together families of children with special needs,” this exceptional site
offers a number of excellent services , including one-on-one emotional support (putting
parents in touch with others in similar circumstances), a lending library of books
and videos, and workshops and seminars. Especially valuable are the Network’s Information
Packets, which offer material on a myriad of topics, such as autism, developmental
delays, epilepsy, spina bifida, and medically fragile infants. A very worthwhile
site!
Family Village
http://www.familyvillage.wisc.edu/
The quintessential site for disability-related resources, the Family Village offers
a wealth of information in a clear format with excellent graphics. Established as
“a global community that integrates information, resources and communication opportunities,”
the site is designed to simulate a real village—click on the Coffee Shop and find
the family gathering place, with parent groups, sibling programs, and chat rooms.
Drop in on the University and find links to disability research programs (including
descriptions!) Move on to Sports and Recreation and tap into a bonanza of recreational
resources for those with disabilities, from camps to Special Olympics. This is a
super site!
Internet Guide for Parents of Children with Disabilities
http://www.familyvillage.wisc.edu/search/guide.htm
Another extraordinary resource from the Family Village Project, this site serves
as a primer for those venturing on to the Internet to learn of a medical condition.
Sections include The Basics, Communicating Online, and Finding Information. This
is the place to find common health acronyms, newsgroups, information on search engines,
even online periodicals of interest to parents of children with special needs.
KidsHealth.org
http://kidshealth.org/
Provides info about the health of kids, ranging from child behavior and development,
to nutrition, general health, surgery, and immunizations. Offers a section for children
that contains health FAQs for kids, games, and more. Also contains many tips and
fun facts to know and tell! A lot of good info at this site!
LD Online
http://www.ldonline.org/
An interactive guide designed as an information source for parents, teachers and
children, the LD Online site includes an in-depth explanation of learning disabilities,
an update on what’s new in the field, bulletin boards, audio clips, and several other
categories.
Our Kids
http://wonder.mit.edu/ok/
Web site dedicated to parents who raise kids with special needs. Provides a reading
list for kids, nutrition information, as well as links to other parenting resources.
Provides links and support for specific challenges, such as ADD, Chromosome X, and
Down Syndrome, and access to national databases, such as GCRC Rare Disorder Network
Database and NORD (National Organization for Rare Diseases).
PEDINFO: A Pediatrics WebServer
http://www.uab.edu/pedinfo/index.html
This broad-based site is not just for doctors, but for anyone interested in children’s
health. A sampling of categories includes publications, a directory of children’s
hospitals, information on congenital illness, disabilities and special health care
needs, and parenting.
Special Needs Resources Online
http://www.scsn.net/~nhelman/famconn/other.html
This site provides an extensive index of special needs resources, including newsgroups,
university programs, general information, and links to support pages such as the
Asthma Page, the Easter Seals Home Page, and Parents Helping Parents.